The Children's Inn at NIH | October 4, 2021
After Three Cancer Recurrences, an NIH Trial Offers Michelle New Hope
Vibrant, hard-working and goal-oriented, Michelle loves to stay busy. At 21, she was dedicated to building her career and future, working full-time at an insurance company while finishing her studies in commercial engineering in her home country of Ecuador. A cancer diagnosis didn鈥檛 fit into her plans.
But when a hard lump reappeared on the side of her neck that couldn鈥檛 be explained away by a recent infection, Michelle underwent a CT scan, followed by a biopsy.
鈥淭hat鈥檚 when the dark thoughts started,鈥 she says in Spanish.
Treatments and devastating relapses
Michelle was diagnosed with , a cancer that affects the lymph system and typically responds well to treatment. She started and completed chemotherapy while working and writing her thesis, graduating on schedule. But only a month later, she received the devastating news that her cancer was back.
Despite undergoing increasingly stronger treatments, she relapsed two more times, leaving a bone marrow transplant as her only option. However, the specialized treatment is not available in Ecuador, and getting treated in another country was out of reach due to high costs.
New hope
That鈥檚 when one of Michelle鈥檚 colleagues told her about the National Institutes of Health. Thanks to the tip, Michelle contacted NIH and was accepted into a groundbreaking, free trial that could save her life.
To prepare for and recover from the transplant, Michelle and her mom spent seven months at The Children鈥檚 Inn. There, they became part of a supportive and caring community unlike any other.
Feeling at home
Despite strict pandemic safety measures, Michelle and her mom bonded with other Children鈥檚 Inn families. Over boiling pots and sizzling pans, Michelle, her mom and other families exchanged recipes and shared stories鈥攕tories that, although their children鈥檚 diseases differed, created the basis for lasting friendships.
鈥淭he time we spent at The Inn, we felt so good, so comfortable, like being with family,鈥 Michelle says. 鈥淲hat I like best is that you feel at home.鈥
The best news
Recently, Michelle returned to The Inn to undergo her one-year transplant checkup at NIH.
For the first time, Michelle, now 25, received the news she always hoped to hear: She is cancer-free.
鈥淚鈥檓 so grateful,鈥 she says.
Thanks to caring people like you, Michelle and other children and young adults with rare and life-threatening diseases can pursue groundbreaking treatments only available as part of NIH clinical research studies while staying free of charge at The Children鈥檚 Inn at NIH.
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